Tag Archives: dissociative identity disorder

DCMS Mailbox: My Partner Is Disappearing

Holly please help! My partner has DID and she herself is disappearing. I dont know what to do. For weeks now she has not been out and i have heard from her personalities that she has little to no chance of coming back. She herself has no idea what is going on. I dont know what to do. I love her very much and I dont want to lose her. She is the best thing that has ever happened to me and I cant just say shes gone. I know she has been going through some seriously large amounts of stress lately that has to do with her family. Please help me.

My advice is not to freak out. And I don’t mean ‘pretend not to be freaking out in front of your partner’ because dishonesty, no matter how subtle and no matter how well-intentioned, is almost impossible to hide from people with Dissociative Identity Disorder; and if she senses that you’re covering something up (in this case: your worry) it will only stress her out more. But worrying about her creates stress, too. So I urge you to do your absolute best to genuinely remain calm, but if that’s just not possible, don’t lie about it or go in the other direction and give in to it. It’ll just make things worse.

Exercise your flexibility

I get why you’re worried. But there are very good reasons not to be. The first being that, no matter what her alters tell you, nothing with DID remains constant. They may believe that she’s not coming back (or they may not – there are reasons a Dissociative Identity Disorder system might tell you this even if it isn’t true) but if she is your partner, that suggests to me a fully-fledged personality. It is possible, particularly if other aspects of her system are capable of navigating the world successfully and without calling much attention to themselves, that she might remain dormant for some time. But it’s highly unlikely (read: just shy of impossible) that she will simply disappear, never to be heard from again.

Focus on the whole

The second reason to refrain from worrying is theoretical and therefore one people generally dismiss (which is a profound mistake in my opinion.) Namely, that your partner is not one specific personality. Your partner is a dynamic human being with a number of aspects of self that, due to this particular pathology, tend to operate with greater independence from each other than they do in most other people. Your partner, then, isn’t disappearing at all. Why not embrace this opportunity to get to know more of who your partner is instead of lamenting the apparent loss of one aspect of who she is?

Trust the system

The third reason (and there are more but this is as far as I’ll go) not to freak out is that she – and I mean the entirety of her person, not one singled-out aspect of it – knows what’s best for her. Have faith. You said she’s been dealing with an inordinate amount of stress … this is how DID systems deal with stress, they rearrange themselves, they move things around to take pressure off of certain aspects. This is what she does. Let her do it. Don’t try to stop it.

In a nutshell: don’t worry!

If I were in your shoes I can tell you exactly what I’d do: I’d interact with whatever aspect of my partner’s identity was presenting and I wouldn’t worry, while interacting with them, about all the other aspects that weren’t presenting. I’d let her be. I’d ask her (whoever) if there was anything I could do to help mitigate the stress in her life and then, assuming I could do it without hurting myself, I’d attempt to meet those needs.

The biggest mistake a partner (or therapist or family member, whatever) of someone with Dissociative Identity Disorder can make is – in my opinion – to infantilize them, to assume that their apparent pathologies ought to be interrupted, thwarted, and redirected for their own good. If she needs to disappear, let her disappear.

Good luck.

The Beginning of Happiness

Stop Being So Religious

Dissociative Identity Disorder treatment claims to be a 5 to 7 year process. I would like to meet the person who has begun and successfully ended DID therapy within that time frame. I would like to hear from that person about what treatment was like for them. Were they in and out of hospitals, like so many of us with Dissociative Identity Disorder? Were they still dissecting trauma years into therapy? Did they ever?

After several years, DID treatment started seeming redundant to me. After a couple more, I lost my patience and quit.

I don’t believe Dissociative Identity Disorder treatment is supposed to be about building a shrine to the past and wailing at it for 60 to 90 minutes, 1 to 3 times per week. And I don’t think anybody reading this believes it, either. But that’s exactly what DID therapy looks like to me.

I guess it’s no surprise that I’m happier without it.

Laughing at the Sky

This is how I feel lately. I wouldn’t have understood it a few years ago. I would’ve felt defensive … Perfect??? In a world where we murder children and attack entire races simply because of the color of their skin? Bullshit. I would’ve thought that to laugh at the sky one would have to ignore life’s horrors. I didn’t want to do that. I didn’t want to ignore anything. I wanted to be someone who wouldn’t look away. I wanted to be, if nothing else, a witness.

Witnesses don’t laugh at the sky, I would’ve thought. They’ve seen too much for that.

But one day not long ago I woke up laughing and I haven’t really stopped since. Depression, anxiety, post-traumatic stress … it’s all still there; I still have Dissociative Identity Disorder. Perhaps I always will.

And somewhere in the world right now people are suffering. In many somewheres actually. Right now and right now and now and now and now man is demonstrating his own inhumanity in new, ever crueler ways. I didn’t think it was possible to know that and also know that life is beautiful.

My God, though, life is beautiful.

Holly Gray, Now with Even More Authoritative Expounding*

When I said good-bye to Dissociative Living last year, life was pretty turbulent. And by “pretty turbulent” I mean I was in a crisis-ridden situation with no discernible end in sight. That makes for some toxic stress, which just intensifies dissociative symptoms, thereby making life even more difficult to manage. I started ditching things that I knew brought me nothing but grief, e.g. smoking. Then I had to get a little ruthless and ditch some things that were awesome, but too much for me to manage at the time, e.g. work.

Things Have Changed

All of those efforts paid off, but ultimately it was removing myself from the crisis-ridden situation that made the biggest impact on my mental health.

I know. Duh.

I’m not losing time as often or as completely (i.e. no recall) as I was before. I’m able to relax fully for at least a little while everyday, where before I was unable to get out of that hypervigilant state that is so hard on the mind and body. My depression has improved dramatically (but that’s also due to a med change) and my anxiety, which was disabling before, is significantly lower. So I’ve decided it’s time to welcome some of those awesome-things-that-became-too-much-for-me back into my life.

Starting With Dissociative Living

That’s right, folks! I’m going to expound and come off as an authority on Dissociative Identity Disorder EVEN MORE now!

I don’t know about you, but I am really looking forward to hearing what I have to say. I’m sure it will be extra authoritative and doubly expounding. I hope you’ll join me, beginning tomorrow, for new content and dynamic discussions!

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*I really do try to reign in my sense of humor here at DCMS. I don’t know, you guys just never seem to realize when I’m joking or tongue-in-cheeking. Anyhow, the better I feel and the less seriously I take myself and my life, the harder it is to keep a lid on it. So, you know … heads up.

DCMS Mailbox: Do My Alters Have A Goal? What Is It?

I answered this DCMS Mail twice.  My first response was crap on account of I inadvertently wrote it more for my critics than the person who asked the questions. I restricted the scope of that answer to my own personal experience and even threw in this ‘find your own answers’ thing that just ended up sounding like a condescending cop-out rather than the humble abdication of authority I was going for. I didn’t realize I was doing any of that at the time, but the whole thing just nagged at me and when I revisited the email exchange it was crystal clear.

It was also pretty amusing. I mean, that first response wasn’t necessarily wrong. It just wasn’t me. And the thing is, Anonymous asked … that’s right, ME. Continue reading

“South to Drop Off, Moron!” and Self-Discovery | On Our Dissociative Minds

Of the four blog posts I published this month, three were about blogging itself. That’s called metablogging; and I do it a lot (more on that later). This month I was bitching about Dissociative Identity Disorder therapists doing it wrong and worrying about how to expand on that without upsetting readers. Continue reading

What My Search for a Mary Oliver Poem Taught Me about Dissociative Identity Disorder Blogging

The text is from a Mary Oliver poem titled Mockingbirds. I read it a few years ago and this section, the last three stanzas, compelled me to bookmark it for later review. The words seemed to me to embody a level of freedom and acceptance I’d never felt. But I knew that I would feel it someday and, when that someday came, I wanted to read the poem again and rejoice that these words had gone from foreign to familiar:

But then my someday arrived and the poem was gone. I didn’t remember the title. I didn’t remember anything about it except that Mary Oliver wrote it and that the last lines said something about opening windows or doors. Not a lot to go on. Continue reading

Blogging Responsibly about Dissociative Identity Disorder

I feel really inspired by your comments on my last post, but I want to go back for a minute and say more about why I hesitate to continue writing about Dissociative Identity Disorder.

I’m a fan of this blog on health and nutrition that is just phenomenal. Really, really great.* Browsing the blog’s Facebook page yesterday, I came across a link to this article, along with the following introduction:

Mental health issues are ABSOLUTELY metabolic. Sleep is one of the most important keys for metabolic balance. Good sleep can regulate everything from your sex hormones to your appetite and energy levels. Now research is linking poor sleep to schizophrenia.

Continue reading

DCMS Mailbox: My Disability Hearing

Pretending is part of navigating life successfully. And by “successfully” I mean “in a way that is palatable and non-threatening to others.” For the most part, those of us with Dissociative Identity Disorder are naturals at pretending. Making believe that things are not as they are is, when you get down to it, the essence of DID. But that also makes this socially acceptable dynamic – pretending something doesn’t exist, or isn’t what it is – an extremely unstable one for us. So when I read this email from Dan Kline, I wasn’t at all surprised:

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First some background. I am 42 years old and have been diagnosed with the following limitations, DID, complex PTSD, manic depression and anxiety. I have had multiple unsuccessful suicide attempts and have been hospitalized 4 different times in 1 year for them. So now I will get to the meat and potatoes of what I am posting about. Continue reading

DCMS Mailbox: My Boyfriend Tells Me When I Switch

I get a lot of questions via email and it occurred to me that it might be helpful to publish (anonymously, and with permission) them, along with my responses. When one person asks something, there are always others wondering about essentially the same thing. Plus, this way other readers can offer their thoughts as well. Let’s get started!

Hi Holly, I’ve been reading your posts on healthy living .com. I am pretty sure I have some degree of DID. I have a question as far as relationships……do you think its helpful or harmful when my boyfriend tells me I had a switch? I of course have no memory of it, and it really sends me into a funk. thanks…..

- Anonymous

(I edited my response here to include two messages, sent separately.)

A lot of significant others do that.

Whether it’s helpful or not depends on a lot of factors, not the least of which is how it affects you. If it sends you into a funk, it doesn’t seem that it’s helpful to you at this time. As far as it being harmful … well, I don’t know about you but if my boyfriend/girlfriend repeatedly did something that sent me into a funk it would certainly be harmful to my relationship.

I personally feel really ambivalent about it. I mean, I can look back and pinpoint situations in which hearing that from my partner genuinely helped matters … in the long run. But it always makes me feel invaded somehow. And it pisses me off, frankly. So I totally understand your discomfort with it.

- Holly

If you have any thoughts on this I hope you’ll share them in the comments. And if you have a question that you feel comfortable publishing anonymously, send me an email with Mailbox in the subject line.

Thanks for the cool mailbox photo, Steve!