Tag Archives: disclosure

About that Door

A friend of mine is fond of quoting from an Adrienne Rich poem entitled Prospective Immigrants Please Note, “The door itself makes no promises. It is only a door.” Indeed, opportunity is only that. No matter the preparation, there is no way to know what life will be like on the other side of any door until we actually cross the threshold.

I’ve thought a lot lately about disclosure; and while there is relief in considering coming out of the closet as someone with DID, I can’t predict with real accuracy whether doing so will truly be the relief I envision.

Every mental health professional I’ve ever seen since being diagnosed with DID has advised me in no uncertain terms to be very wary about disclosing my diagnosis. Each of them would strenuously caution me to reveal my diagnosis only to those on a need-to-know basis, and only after objectively considering if they genuinely need to know. I seriously doubt any of them would support even blogging in anonymity. After all, true anonymity is a hard thing to come by.

Are all these professionals simply overly cautious pansies? Hardly. These are people who have helped many a client to remember their worth after disclosing their diagnosis and experiencing a painful rejection as a result. They also know better than most the very real stigma that accompanies mental disorders and how marginalizing that stigma can feel.

Then there’s the other side of the coin: fascination, which is a form of rejection in and of itself. When others express interest in me because of DID, they are seeing DID first and me second. Or third. Or fiftieth. And that kind of fascination begs the question: if I didn’t have DID, would they be this interested in me?

Beyond all of that is the reality that I am not my diagnosis. And with a diagnosis as heavily laden with mythology as DID is, it’s easy for both someone with DID and those that know them to lose sight of the very real human being at the center of the large shadow their diagnosis casts.

Let’s also not forget that awkward and sometimes humiliating faux pas, the overshare. It’s important, I believe, to pay attention to the line between appropriate candor and outright exhibitionism. Authenticity is one thing. Attention-seeking is quite another. Motive is important.

With all of this in mind, the question becomes not, “What’s on the other side of the closet door?” but “Can I continue to thrive on this side of the closet door?” If my shoes are too small, I cannot wear them. It doesn’t really matter whether I’ll like a larger pair or not, whether a larger pair will suit me or if all I can find are some embarrassing clunkers that go with nothing I own. I don’t have the option of wearing shoes my feet can’t fit into. Neither do I have the option of living in a way that has become too small for me.

A Case for Disclosure

There is a difference, I think, between privacy and secrecy. The former speaks to a need to have something of one’s own, without intrusion. The latter speaks to a need to hide something, and to a fear of it being exposed. Sometimes I have trouble telling the difference. Over the years I’ve determined that the deciding factor for me is the presence or absence of one particular emotion: shame.

Secrecy breeds shame. If I find that I am reluctant to reveal something about myself and I feel ashamed at the thought of doing so, I am keeping a secret. But if I choose not to disclose something even though considering it does not produce shame, I am protecting my privacy.

Dissociative Identity Disorder was a source of shame for me for a long time. The diagnosis was exceptionally difficult for me to digest and even harder to come to terms with. Initially I told people about it in desperation. I felt isolated and like my sanity was hanging by a thread. I needed understanding, compassion, and validation. What I found was repulsion, rejection, and sometimes even outright hostility. I now know how common that is but, at the time, those reactions shocked and wounded me. I learned quickly to keep my mouth shut. And back then that was probably the smartest choice.

But times have changed. For one thing, I understand now how repelling shame can be.

“…no matter how much you think you love somebody, you’ll step back when the pool of their blood edges up too close.” -Chuck Palahniuk, Invisible Monsters

Shame is like that blood.* Nobody wants to get it on their shoes. Divulging information that is shameful to me is genuinely a risky move; and one that requires caution and discrimination. Not just to protect myself from the particularly acute pain of rejection at a time when I need empathy the most, but also to respect other people’s comfort levels.

But the thing is, I’m not ashamed of DID anymore. When I say I have Dissociative Identity Disorder there is no blood pooling at my feet. The implications of that are threefold.

  1. Because I do not feel shame, acceptance from others is not nearly as crucial.
  2. The absence of shame creates room for people; they don’t feel encroached upon.
  3. I am not saying I have Dissociative Identity Disorder out of a desperate need for help. Remember, there is no blood. I don’t need rescuing. If I say I have DID, it’s simply because I do.

Really though, the single biggest motivator for coming out is that hiding something that is such a huge part of who I am is exhausting. It’s never been in my nature to live in a closet. I’ve done so for thirty-six years because I couldn’t find my way out. Now that I’ve found the door, I have the option of opening it.

*Please forgive me my clichés. I admit I rely on metaphor and analogy to help me make sense of things.

Thoughts on Anonymity

For five years I’ve operated under the assumption that the number one reason people with Dissociative Identity Disorder don’t “come out” about being multiple is that doing so directly contradicts the essential nature of DID. At its heart, DID is about survival. It’s about moving the intolerable out of conscious awareness so that you can function and, often, even thrive. Dissociative Identity Disorder is so adept at concealment that it hides its very existence. It resists exposure to such a degree that, like a hand over the mouth, it silences us.

I now find myself questioning that assumption. Which isn’t to say that I question whether DID stands in the way of revealing itself. I don’t doubt that for a moment. But I do question whether that is the primary barrier to disclosure. In large part because my personal experience has been that as I become more accepting of Dissociative Identity Disorder and how it manifests in my life, I am less afraid of how or whether others will accept it. And as that fear diminishes, so does my reluctance to talk openly. DID is still there; and yet I am talking about it. This suggests that fear of how others might perceive me plays a far larger role in my silence than DID’s drive to remain hidden does.

I think it’s fair to say that much of that fear is a product of the environment I grew up in, the environment that helped create DID for me in the first place. But some of it has to do with the existing public perception of Dissociative Identity Disorder, which is muddled in mythology and out-and-out falsehoods. Repeatedly, what I hear from people with DID is a disclaimer: please forget about The Three Faces of Eve, Sybil, and any crime drama you’ve ever seen with a DID character. “I’m not like that!” we declare with a hint of desperation.

A few days ago I read this article at bitchmagazine.org and found that my need to comment was more powerful than my fear of exposing myself. I discovered to my happy surprise that I wasn’t at all concerned with trying to frame my comment in such a way as to downplay anything that might smack of crazy. All that mattered was expressing myself in a way that did my feelings justice.

I never thought I would fully come out as someone with Dissociative Identity Disorder. I assumed DID itself wouldn’t allow that. There was a time when that was true. But now the only thing that keeps me from identifying myself or telling people I have DID is apprehension about how I might be perceived. It’s a relief, after all this time, to discover that my disorder is not what demands secrecy; my fear is. And with that fear diminishing at an astonishing rate, I find myself considering what it would be like not to have to keep the secret at all.

Begin

Five years ago I was diagnosed with Dissociative Identity Disorder, but in many ways I feel like I am just now beginning on the path of healing and recovery. I started this blog as a way of documenting and sharing that journey.

I know that outing myself as someone with DID might make me a target. I don’t know what it is about trauma-related disorders that often make people uncomfortable, angry, even cruel. But I like to think it’s simply ignorance. I have faith that if more people with Dissociative Identity Disorder would speak honestly about their experiences and struggles, there would eventually be less mythology surrounding the disorder and more understanding. Those of us with DID might begin to be seen as real people, with real lives; and not as the dramatic, fictional characters we’re portrayed as on movies and television.

Because DID by its very nature is designed to go undetected this is all much, much easier said than done. Telling the world, or anyone, I have DID goes against what I consider to be the ultimate purpose of the disorder: to hide. My hope is that by remaining anonymous I can provide enough of a glimpse of what it’s like to be someone with DID to make a difference, even if it’s just to one person, while still protecting myself and my system.

I hope those of you who have enough knowledge of DID to fully grasp the gravity of what I am doing in sharing so publicly will try to understand why I am doing it and not judge me too harshly for it. I hope those of you who don’t will consider leaving any ideas you might have about mental illness and/or multiple personalities behind and read with curiosity and an open mind. As for me, I hope I can help to demystify DID by continuing to write honestly and with humility.

There is no promise in hope, of course. It is only hope. But it seems like a good place to start.